Welcome to the SADS Foundation.
Established on December 12, 1991 by Dr. Michael Vincent, The SADS Foundation is a community of families, medical professionals, and supporters saving lives and advancing care for people with heart arrhythmia conditions that can lead to sudden death.
Support the EL-PFDD
This is a once in a lifetime opportunity to inform the FDA, researchers, and biopharma companies about the experience of living with LQTS and CPVT; it’s focused on the voices of those who have been so profoundly affected by these conditions – meaning, YOU and your family!
Gene Therapy Awareness
This month, at the SADS Foundation, we’ll be spending the whole month educating YOU about the basics of gene therapy – so that when clinical trials do open for these conditions, you’ll have the information you need to make a personal decision on whether to participate.
Drugs to Avoid Webinar with LQTS
Thursday, April 25 Dr. Will Heise, a Scientific Review Committee member of CredibleMeds.org conducted a Q&A about what supplements or other drugs to avoid. Watch the recording now.
Get Involved in Research
This is an exciting time for those with SADS conditions because there is so much new research happening and a greater push for new therapies!
Get Involved
Connect with families who share a similar experience, give back, or help drive change around medical research, legislation, or awareness-building. Join us in making an impact!
Stay Connected
Join our email list to get the latest SADS related news and updates delivered to your inbox.
Show Your Support
Your support — no matter the size — powers life-saving research and medical education, patient advocacy, and awareness for SADS conditions.
There are many ways to support our community, including becoming a sustainer as a monthly donor, making a one-time gift, hosting an online or in-person fundraiser, donating to one of our honorary funds, or with your own creative idea!
Learn more about how you can save lives and strengthen our community through the various ways to give.